Carli has a disease that is ‘turning her into stone.’ The incredibly rare condition known as Fibrodysplasia ossificans progressiva (FOP) has caused Carli’s muscles, tendons and ligaments to turn to bone, fusing her into a ‘frozen’ position. Carli’s hip has locked, forcing her to stand on one leg.
This intimate film shows how Carli battles with intense pain on a daily basis and has already lost significant mobility throughout her body. We see how she struggles to eat, because her jaw now only opens 2mm. There is currently no cure for FOP, but Carli is participating in a clinical trial to help treat the condition. But despite slowly turning into a human statue, Carli is refusing to let the condition stop her from moving in with her boyfriend and living life to the full whilst she can.
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